Has it really been just 10 days?

How is this even possible?  Three words.

On January 17th, Keith was brought to TGH, on a ventilator, unable to speak, his body ready to give up.  

Years of deterioration and infection had rendered his lungs completely unable to power his body anymore.  Keith had the will to continue, but his body was not cooperating.  

For 12 days, Keith was in and out of coherent thoughts.  Days went by when he was merely a shell, with a machine that breathed in and out for him, his mind addled by medications and his body fighting to keep him here.  

When I was with him, I was strong.  When I spoke to family and friends, I was strong.  The nurses, media, and strangers couldn't believe how I remained calm, dignified, and even smiled and laughed when I was with him.  How did I do it?

A few weeks before Keith was admitted, an old school friend told me she wanted to give me something.  A talisman.  I admit, I figured I was going to get some smooth rock carving made by an inuit.  I had no idea.  Two days after he was brought in, she brought by my present.  It was a simple silver chain, with three charms on it.  

Faith

Hope

Love

I'm a pretty simple girl when it comes to jewellery.  I've worn the same gold chain for the past 13 years.  I took it off, and put this on.  I touched each talisman and said the words to myself, and then out loud.  This is what would get me through.  

First - Faith.  Faith in God, faith in people, faith in our doctors.  I had to have it, otherwise there was no...

Hope.  Hope that the call would come, that Keith would hold on, that life would continue so that

Love could continue.  My mantra continued throughout each day.  It charged me.  It propelled me to continue to move forward.  Faith. Hope. Love.  

On January 29th, Keith received the gift of life in the form of a pair of gorgeous (I have on good authority) lungs.  A simple decision that was supported by a family.  There was Hope.  My Faith continued to give me strength.  My Love for humanity grew.  

February 7, 2013

Keith is now in a room down on the 7th floor, less supervision, fewer bells and whistles connected to his body.  No oxygen during the day, (possibly at night).  Two chest tubes still in and his bad sense of humour firmly intact.  

Now our hospital days are spent doing more walking, follow up doctor appointments, x-rays, more follow ups with doctors, getting some much needed rest (it's a much quieter floor than the 10th!) and healing.  

Every day is a gift.  Every moment is precious.  And yesterday, Keith finally asked me about some timelines.  He wanted to know why I was saying that he had been in the hospital for three weeks.  I had to tell him that he had been here for 12 days, in and out of consciousness, and that I had been by his side for the entire time.  He looked at me, puzzled, and began to weep.  "How did you stay sane?", he asked.  I pointed at my necklace.  "Faith.  Hope.  Love.  There was no other option for me,  I have you back now.  

Eternal gratitude to the donor.  

Want to know how you can help? 3-4 easy steps!

How can we help?

FLIPSIDE OF THESE

This is the question that I am asked the most.  What can I do to help?  Here are the answers:

1. THROW AWAY THESE!

 2.  Grab THIS

REMEMBER THESE?  YEP, WE DUTIFULLY SIGNED THEM AND HAD A CONVERSATION WITH OUR FAMILIES.  GOOD ON YOU IF YOU HAVE THEM STASHED IN YOUR WALLET.

NOW THROW THEM OUT.  Really, toss them.  They are useless.

3. FLIP.   See "DONOR' 'DONNEUR'?

If you see Donor / Donneur, you are golden.  You can stop, have a coffee or glass of wine and maybe chocolate.  You are registered! 

DONT SEE DONOR?  SEE NEXT STEP

GO TO beadonor.ca AND REGISTER.  2 MINUTES.  THEN YOU GET YOUR CHOCOLATE.  

At which point you kiss your loved one, have them do the same as above, and you both enjoy your day knowing you can save up to 8 lives and enhance the lives of 75 more through tissue donation!  Wasn't that easy?? 

Please "like", share, and spread the word on Facebook at Lungs for Keith to Breathe   Each "like" helps the internet to LOVE this page, which increases awareness for this incredibly important cause.  Share with the WORLD: because we can!  Share the hashtag #forKeith2breathe on Twitter.  Thank you all from the bottom of our hearts.  

#forKeith2breathe

Our new normal - phones at the dinner table a must!

Hands up if you have a "no phones at the table" policy

We do.  We did.  We don't now.  

Will this be the paranoid phase for the next little bit?  Will we be double checking our phones to make sure the ringers are on?  Constantly checking the battery power?  Hearing phantom rings?  

Today we met with our wonderful Transplant coordinator at Toronto General, met with one of the thoracic surgeons and signed all the paperwork and officially had Keith put on the transplant list for a bilateral (double) lung transplant.   We found out that apparently, Keith's current lungs are too big for his body...that one weirded us both out.  

The call could come in a day, a month, a year.  It could come in the middle of rush hour, or 2 in the morning.  It could be a false alarm, it will likely be a false alarm, or very, very real.  

I asked Keith how he feels right now.  First word - relieved.  Second word - um.  Third word reiterates the first.  He is relieved, he is happy that the team sees him as sick as he is.  It's no longer a question of "is he sick enough", but can he stay healthy enough for long enough to get new lungs.  

There will be physio three times a week, regular blood testing, Pulmonary Function Tests, Antibody tests, group information and therapy sessions, and clinic visits with the respirologists, and evening seminars.  Amidst all of this, the phone will ring.  The phone will ring, and it won't matter if the phone is at the dinner table, it won't matter what time it is, or where we are.  It will ring.  

When it does, Keith will be ready.  I will be ready.  His children, friends, and extended family will be ready.  

We are armed...and ready.  Bring it.  

Ask and it shall be given

My first mobile post and its a doozie!

This morning was like any other morning, and at around 10:30 the phone rang. Our lung transplant Coordinator was calling to tell us that Keith was being placed on the transplant list at the highest priority possible.

I firmly believe that the universe was listening. Last night I blogged about the agony of waiting, and this morning the wait was over.

I cannot thank enough all of the people who have continued to support Keith and myself in this journey. There are too many of you to name but suffice it to say that every single one of you has made a profoundly positive difference in our lives.

I took a quick photo of Keith right after he got the news, he is very happy.

At the risk of this reminder sounding ill-timed, I would still like to remind everybody to please make your wishes known with respect to organ donation, go to www.beadonor.ca and make sure that you are registered for organ donation.

Bless you all. The next part of our journey has begun.

Sarah