Keith's 41st Birthday - Walker anyone? Sexy picture alert... NOT!

In any other blog, this might be a joke - Updated Sept 24th

You know the one, "look at you old man, turning 41, want some Grecian Formula and a cane?"  You know, the bottles of Geritol and subscriptions to CARP?  It's Keith's 41st birthday today, September 23, 2012.  

It's not so funny when it was recommended to Keith last week at his Assessment week at Toronto General Hospital, that he will benefit from a walker.  He is currently unable to walk more than 75 metres in 6 minutes, and after doing THAT, he is completely out of breath.  With a walker, he managed 150.  

A big part of pre-transplant preparation is physio.  It is crucially important that Keith is in the best physical condition that he can possibly be in so that come that amazing day, his body is strong and ready to have the surgery that will save his life.  So, a walker it is.  That and Timbits, but I digress.  

I've combed Kijii and Craigslist.  Crazy thing, I email people on those sites but they don't email back.  I can certainly run out and buy one, but there is actually an assessment process to buy one, and call me crazy, but didn't we do that last week every day, for about 6 hours a day??  

Somebody out there in the Oakville, Burlington or Mississauga area has a decent walker, with 4 wheels and a seat (not the skimpy aluminum ones that just fold, and don't do much else) that they are not using any more.  And of course when I looked for an image of a 41 year old man with oxygen needing a walker, all I found was old man.  I refuse to post that.  

Pretty sexy isnt it?

I went out this morning to get Keith some Timbits (his latest weight gaining trick, 90 calories each, and sour cream his favourite) and had a man walk up to me in the parking lot, as I was coming out.

"Do you know how fattening those are for you?" he said.  "Yes, I do sir, my husband is waiting to be listed for a double lung transplant, and these are helping him to gain the weight that he needs to be strong enough for the operation"    I hated to be so blunt, but lately, I find there is no time for formalities.  

If you know someone in the Oakville area who is no longer using a walker like the one on the left, we are happy to purchase it from them.  I'd love to get one for his birthday today.  

Update - Sept 23 3:00 p.m.  We received a walker from a kind soul, and were so appreciative of shares and tweets to help find one!  Keith got his walker, and now we move on to the next phase.  Waiting to get word of being listed!  

Meeting the "Family"

Sept 17 - 21 is Assessment week

And we are beginning to learn something interesting about this process along the way; that there is a sort of "family" that begins to happen.  Not our words, but those of Hélène Campbell who we met on Monday morning while waiting for some tests.  

I'll be honest, I wrote back in late July about my excitement to meet a fellow Oakville native, Rob Alexander-Carew who had just been through his double lung transplant and I was super excited at the opportunity to learn from him.  When I rolled Keith in to the lab on Monday, Hélène was there and I was, well, starstruck.  

Keith, Sarah, and Hélène

Keith and I were fortunate enough to have about 10 minutes to chat privately with her, about her experience, the amazing job she did of rallying her friends to help raise awareness for organ donation, and the work she continues to do to raise the profile for IPF (Idiopathic Pulmonary Fibrosis).  She and Keith both share a love of Reese's peanut butter cups, and she is an incredible young woman who will continue to do great things for people affected by lung disease in the years to come; of this I am sure.  

In addition to meeting Hélène, we met other recent lung recipients.  I was actually introduced to two people as "they are singles (single lung)" and this was when the concept of the family was explained.  You become a family because you share something that few others can completely relate to.  

Keith and I have spent the last three days going from appointment to appointment in the hospital.  We have had the privilege of meeting many more people in the transplant program, from people waiting on the list, to others being assessed to be listed.  We know their names, we are learning their stories, and the connections are being formed - no matter what happens.  We care what happens to them, and already I find myself thinking about how things will be in 3 months, 6 months, and beyond; for us and for them.  

This truly is about Keith, about his health, about his journey, and about ensuring that he gets the care and treatment that he needs to continue to live a long and healthy life.  Keith is my hero.  He accepts what is with a resolve and strength that I don't know if he realizes he has.  As we continue on this journey, I know for a fact that the heroes are every single person who works in the transplant department of TGH, from the technicians in the lab, to the social workers, to the rehab workers and the surgeons doing this incredible surgery, and of course, the Trillium Gift of Life program that coordinates and makes it all possible.   Thank you.  

I will post an update later this week with specifics of the assessment process.  Until then, thank you for all your good wishes and prayers.